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Advance Care Planning: The Need for Ongoing Conversations

Advance Care Planning: The Need for Ongoing Conversations

Advance Care Planning: The Need for Ongoing Conversations (00:03:30)
Video Transcript

You can't predict how you'll feel about the end of your life until you're there.

So it's a good idea to keep checking in with your loved ones and your care team about what's important to you now.

And that may be totally different from what was important to you 10 years ago… or even 10 days ago.

This video will give you a chance to think about how you're feeling now.

You may even choose to press "pause" and explore some of the questions.

[Man 1] "I thought I didn't want any heroic measures.

But I changed my mind once I was actually facing my mortality."

[Woman 1] "My mom said yes to a feeding tube for dad.

But after he passed, she said, 'Don't ever do that to me.' "

Frequent checking in gives you the best chance of getting the care you want.

And of not getting the care you don't want.

And that can help you---and your loved ones-- avoid extra stress and suffering.

[Man 2] "My brother and sister and I fought all the time about what we thought was best for dad.

It was hard to distinguish between what was best for us and what was best for him.

It would have been a lot easier if we felt confident that we knew what he wanted."

Here are some questions around treatment to keep revisiting as your condition and your preferences change.

There are no right answers.

And you can change your answers at any time.

How much detail do you want about your condition and treatments?

How much do you want to be involved in medical decisions?

How involved in your care do you want others to be?

And who do you want those people to be?

What do you expect on the other side of this treatment?

[Man 3] "I'm still haunted by how things ended up.

I wish I could've asked my mom's doctors: 'What's her life going to look like after this treatment?' We waited too long to talk about her wishes because we were trying so hard to be optimistic."

And here are some questions around your values to keep talking about: What are you most worried about?

What gives your life meaning right now?

What gives you hope, comfort, or peace?

Where do you want to be at the end of your life--at home or in the hospital?

These are tough questions.

So it might help to put your thoughts in writing and give them to your loved ones or care team… or even to make a video of yourself.

As you think about these things, stay true to yourself.

Don't make assumptions.

And ask questions.

Ask what others are thinking and how they're feeling.

And ask about anything that seems confusing about your care or treatment.

And finally, remember: This is your journey.

Others may not agree.

But if you're true to yourself, you'll be giving everyone a great gift… the gift of knowing they carried out your wishes.

[Woman 2] "I asked my mom, 'Mom, what are you most afraid of at the end of your life?' That started us talking.

At the end I felt we did all we could to honor her wishes.

Sometimes, the best conversations are the hardest ones."

This information does not replace the advice of a doctor. Ignite Healthwise, LLC disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions. Image is used for illustrative purposes only and any person depicted is a model.

This information does not replace the advice of a doctor. Ignite Healthwise, LLC disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions. Image is used for illustrative purposes only and any person depicted is a model.

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