When I first understood that I needed dialysis, I was stunned.
And frankly, I thought my life as I knew it was over.
But my life as it was wasn't that great either.
I was tired and felt like, well, I felt terrible all the time.
I also thought dialysis would take time away, but I use the time as "me time"
to listen to my books on tape from the library and write in my journal.
But my latest fun is a game that my son put on my phone. [VIDEO GAME SOUNDS] This is my new "normal."
I'll live with dialysis rather than give up game night with my friends.
Some of the changes have been easier than others.
A dietitian helped me make changes to my diet.
For example, based on my lab results, I learned I need to limit potassium.
So I now eat berries instead of bananas with my cereal.
I also learned that I need to limit phosphates, like those in processed foods.
And, I need to be sure that I get enough protein.
I was worried about how dialysis might affect my work.
I can't lift anything heavy anymore, so I worked with my boss to change some of my job duties.
And I have a treatment schedule that fits my work schedule.
We take a lot of family vacations, so I was afraid that I'd have to stop traveling.
But my health is stable and most places we go are "dialysis-friendly."
So far I've found dialysis centers wherever we've gone.
And I was able to get treatments as a "visitor."
Of course, there are lots of things that I need to check with my doctor about, such as over-the-counter medicines.
I was surprised to find out how many meds can harm my kidneys.
Believe me, dialysis took some getting used to.
But the biggest surprise for me was how my friends and family are so willing to help.
All I have to do is ask.
And when I felt like no one understood, I reached out to others on dialysis.
I've gotten understanding and support for my emotions.
And lots of tips and ideas for me as a "newbie" to dialysis.
Such as asking to use the stationary foot pedals so I can get a little exercise during my treatments.
A big bonus?
I've made quite a few new friends.
[CHATTER] What would I say to a person who is new to dialysis?
I'd say, "Welcome. We're glad you're here."