Polycystic kidney disease (PKD) may require making changes in your lifestyle to help manage blood pressure, hydration, weight and kidney cysts. These lifestyle changes include following a low sodium diet, drinking plenty of fluids, avoiding excessive protein intake and maintaining a healthy weight through eating well and exercising regularly.
Sodium
In general, aim to keep your sodium intake to around 2000 milligrams (mg) per day or less unless otherwise advised by your medical team.
To limit your sodium intake:
Do not use salt at the table.
Cut out or use half the amount of salt (or less) normally used in recipes and in cooking.
Read food labels. A low sodium food is less than or equal to 140 mg/serving.
Avoid foods high in sodium as listed.
Common Foods High in Sodium
High Sodium Meats
Bacon
Canadian bacon
Corned beef
Hot dogs
Smoked fish
Luncheon meats
Smokes Sausage
Bratwurst
Ham
Herring, sardines
Canned meat entrees
High Sodium Cheeses
Camembert
Cheese spreads
Roquefort
Processed cheese (Velveeta, American)
Gorgonzola
Party Dips
Convenience and Processed Foods
Breads and rolls with salt toppings
Frozen dinners
Oriental foods
Pot pies
Packaged entrees, rice
Potato and noodle mixes
Potato chips
Tomato juice
Canned tomatoes, sauce, paste
Sauerkraut
Bouillon cubes
Gravy, sauce mixes
Pickles, olives, relish
Salted snack crackers
Pretzels
Soups, canned, frozen, or dehydrated
Seasonings that Contain Sodium
Celery salt
Chili salt
Garlic salt
Lemon pepper
Horseradish
Onion salt
Soy salt
Lite salt
Meat sauces
Meat tenderizers
Monosodium glutamate (MSG)
Seasoned salt
Condiments (use in moderation)
Peanut butter
Ketchup
Store-bought salad dressing
Seasoned vinegar
Bottled sauces:
Soy
Fish
Oyster
Barbeque
Worcestershire sauce
Sodium-Free Substitutes
Spike® Salt Free or Dash™ (all kinds)
Good and gather salt free seasoning
Table blend salt free seasoning
Bragg® 24 Herbs & Spices Sprinkle
Lawry’s® Seasoned pepper
Dried horseradish
Onion powder
Garlic powder
Fresh garlic
Scallions, onions, shallots
Fresh or dried herbs
Pepper (white, red, black)
Tabasco sauce
Vegit®
Protein
Your body needs a diet with enough protein to maintain and grow body tissue. Too much protein intake can be hard on the kidneys and should be avoided. Keep protein intake to normal daily requirements. Try not to exceed this too much.
The recommended daily protein intake is about 1.0 grams per kilogram (kg) of ideal body weight (IBW) per day. If your kidney function is significantly reduced, a mild reduction in protein intake towards 0.8 g per kg of IBW may be recommended by your medical team. Ask you nephrologist or dietitian what your daily protein goal is.
Protein Serving Sizes
Each of these is equal to one choice or serving and contains about 7 grams of protein:
1 oz beef, lamb, pork, poultry, or fish
¼ cup salmon, tuna, crab, poultry, fish, lobster, or clams
¼ cup cottage cheese
1 oz. or 5 medium shrimp
1 egg or ¼ cup egg substitute
2 Tbsp peanut butter
1 oz or ¼ cup of nuts
4 oz tofu, 1 oz tempeh
½ cup cooked dried beans, peas, lentils, and soybeans (edamame)
1 oz natural cheese (Swiss, Cheddar, etc.)
Milk is also a protein source. Each of these milk choices contains 8 grams of protein:
1 cup milk
1 cup regular yogurt
¾ cup custard
2-3 oz or ½ carton of Greek yogurt
1 cup cream (milk-based) soup
½ cup ice cream
1 cup milk-based pudding
2.5 cups non-dairy substitute
Plant-based Diets
New studies have shown that eating a vegetarian-type diet that includes plant-based proteins like nuts, beans, and seeds may help your kidneys stay healthier. A good goal is to make half your weekly meals have plant-based protein sources.
Fluids
Getting plenty of fluids is important for kidney health. It may help reduce cyst growth. Drink more than 3L of fluids per day (most of this being water) in PKD, unless otherwise specified by your medical team.
Avoid or limit sugary-sweetened beverages and caffeinated beverages (1-2 cups/servings per day). They can raise your blood sugar and blood pressure levels and be dehydrating.
It is important to also know that kidney function and many other factors can significantly alter your fluid intake recommendations. Make sure to discuss your personalized fluid intake recommendations with your nephrologist and dietitian.
Tolvaptan
While you are on Tolvaptan, one of the medicines used to slow down PKD, will make you thirsty. You may have to drink more than a gallon of water per day.
While taking Tolvaptan, avoid grapefruit or pomegranate fruit or juice. These can raise Tolvaptan levels to toxic ranges.
Beverage options to provide variety/flavor water and increase fluids:
Unsweetened
Hint® water or homemade infused water (ex: cucumber and mint)
Sparkling waters
True Lemon or Lime crystalized packets
Unsweetened herbal tea or decaf coffee (1-2 servings per day)
Sweetened with Stevia (1-2 per day)
Stur™ or SweetLeaf® drops
True® Lemon-flavored Lemonades
Zevia® (caffeinated and non-caffeinated options)
Physical Activity
The National Physical Activity Guidelines for Americans recommends adults get at least 150 minutes of moderate intensity activity or 75 minutes of vigorous-intensity activity per week. Also, adults should include muscle-strengthening activities at least 2 days per week.
Moderate-intensity Activities: brisk walking, cycling or swimming.
Vigorous-intensity activities: running, fast cycling or sports (soccer, basketball, etc.).
Muscle-strengthening activities: lifting weights or using resistance bands.
Weight Management
If your BMI is greater than 25, it may benefit your kidneys to lose weight to a BMI 18.5-24.9. This can slow the growth of cysts in the kidneys. Your dietitian can help you with weight loss if needed.
Weight Loss Information
If you are looking for a group program to help with weight loss, consider joining UW Health’s Lifestyle Change Program. It is a CDC-Recognized Program, designed for adults looking to make sustainable changes to their lifestyle, including nutrition, activity, sleep and stress management. Please visit: https://patient.uwhealth.org/education/lifestyle-change-programming.
We also offer cooking classes for PKD patients at our Learning Kitchen. For more information, please visit:
https://www.uwhealth.org/services/learning-kitchen.